His diagnosis is Tuberous Sclerosis Complex, but what got him, what really knocked him down, was infantile spasms (caused by the numerous tubers on his brain). The more I read about infantile spasms, the freakier they sound. They are described as a rare and CATASTROPHIC form of epilepsy.
Hmm.
Catastrophic.
Call me crazy, but catastrophe, in general, is not welcome in my child's brain.
Yes but complex partal seizures can present in a similar fashion & are not nearly so bad.
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My son has TSC
Hi Ron! He had complex partials as well. I was not nearly as concerned about them. The IS really took it out of him (he had made little to no developmental progress by the age of 9 mos when he had his surgery). How old is your son?
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